Patients are taking on ever increasing roles in advocating for medicines development, equal access to treatments across Europe and ensuring that medical information is clear, accurate and comprehensible. In order to help prepare them for these roles and as part of its commitment to empowering people living with rare diseases, EURORDIS launched its own training programme for expert patients in 2008.
The programme allows patients and researchers to sharpen their advocacy skills and gain an understanding of the regulatory process of orphan medicinal products so that they are able to advocate at a European level.
The programme has online and face-to-face components. The face-to-face portion trains 40 expert patients annually as part of an intensive 4.5-day course held in Barcelona, Spain.
How to apply
The next edition of the EURORDIS Summer School will take place in June 11 – 15 2018 in Barcelona. The application process will open on 16 October 2017. Details on how to apply will be posted on this page. For more information about EURORDIS Summer School please contact Nancy Hamilton firstname.lastname@example.org
Content of the programme
The EURORDIS Summer School covers the follow topics:
- Clinical Trials Methodology
- Clinical Research
- Ethical Considerations in Medicines Development
- Regulatory affairs
- Health Technology Assessment
- Marketing Authorisations